About Us

Lipperini Community Outreach and Support, LLC began with a lived experience that refused to stay silent.

Founded in 2025, this organization was created for those who have been misunderstood, misdiagnosed, or made to feel invisible. Living with Ehlers-Danlos Syndrome (EDS) and the many complex conditions that often come with it revealed a difficult truth, so many people are searching for answers, validation, and someone who truly understands. 

What started as personal struggle became purpose.

With years spent supporting her fellow veterans and others in need, the mission grew into something more intentional becoming a voice for those who are too often unheard. A voice that says, you are seen, you are believed, and your experience matters.

Today, the work is rooted in raising awareness for EDS and other invisible conditions (often that coexist with EDS) while building meaningful connections within the community. From developing partnerships to writing and preparing for publication, every effort is driven by the same goal to create understanding, spark empathy, and make space for real conversations.

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    At the same time, this journey is shaped by the reality of living with chronic illness. It requires balance, patience, and honoring limits. And within that balance, something powerful has taken shape.

THE HEART OF THE WORK

Zany Zita is the heart of that work today.

Through joyful, creative outreach, Zany Zita connects with children and families in ways that feel natural, engaging, and meaningful. It creates space for laughter while gently building awareness, empathy, and encouragement.



Because sometimes, the most powerful way to reach people… is through joy.

WHY THIS WORK FEELS DIFFERENT

This work is designed to feel different.

It is welcoming for children, supportive for families, and impactful for organizations seeking outreach that truly matters.

It’s about real connection.

Real understanding.

And meeting people exactly where they are.

Mission

We are committed to empowering individuals and communities through awareness, advocacy, creativity, and human-centered innovation.

Our focus is on supporting those living with EDS, children and families navigating this invisible disability and often co-existing chronic conditions. Individuals who have been misdiagnosed or unheard.

Through connection, education, and compassion, we strive to turn awareness into understanding and understanding into meaningful change.

Let’s bring love and awareness to the community together- one tutu at a time.

Whether you are planning a school visit, community event, workshop, or partnership opportunity, we would be honored to connect.

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Contact Us